Why I Don't Use The Terms: High/Low Functioning
You've probably wondered,"what's wrong with using the words high or low functioning to describe someone's autism?" Here's the thing, using the term "functioning" is outdated and can actually come across as harmful to anyone in the autism community. Today, I want to talk about why that is.
Even though I started my advocacy journey by researching and learning more about autism about 2 years ago, I feel like I've come far enough to say that over the last several decades since autism has been a diagnosis in the DSM and ICD that using the term high/low functioning comes across outdated. When I first started my advocacy journey, I felt using the functioning terms was fine. I feel like using the "support needs" terminology is more appropriate and affirming. A lot of people don't know much about autism. Granted, it didn't start to become its own diagnosis in the DSM until the DSM-III. Knowing more about autism can help so much with knowing what words are acceptable by the community to use.
Some people still think of the autism spectrum as a straight line—from less autistic to more autistic—but that kind of thinking isn’t helpful. (You can see the image above) Autism isn’t a medical hierarchy. People’s needs fluctuate depending on the individual and the situation. For instance, I’m usually okay with getting ready for the day. But there are some times when I need some support or help getting the motivation to perform certain tasks. This is also true for a lot of people on the spectrum. Getting the right help looks different for everyone.
What I love most about meeting other autistic people is seeing both the similarities and differences between us. The similarities help me connect and relate to others, especially when I’m trying to support them.
Let's start moving away from outdated labels like “high-” or “low-functioning” and focus more on support needs to help us see autistic people as whole individuals, not just as categories. Doing so reminds us to respect each person’s unique experience and to offer the kind of support that really fits their life. Language matters, and when we use it thoughtfully, we make the world a little more welcoming for everyone on the spectrum.
Why do YOU think it's important to stay away from the "functioning" lables?
Here's a YouTube Short for funsies:
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